So yes, I am back in the hospital. This is gettiig really annoying....
Was feeling so awful the past few days. Not only did I have horrible pain in my throat from flare up, but I also had severe headahe, body aches, fever, chills, felt like I was hit by a truck, etc. I thought I had a sinus infection. But it turns out that I have cellulitis in an ulcer on my left calf. I would post a picture but it's too disgusting. Makes me feel ugly.
I was admitted through the Emergency Room and was feeling much better after receiving steroids and pain meds. Today, my Mom, sister, brother in law, and two cute nieces surprised me and came to visit. My Mom and the girls made me a Hello Kitty from build a bear (so cute) and the girls made me pictures (so sweet). They are so adorable and the older one is so genuinely caring at the age of four. I mean she is just so previous. It was such a wonderful surprise. I rarely get visitors other than my mom so it was a great time. I was exhauted near the end and sweating my butt off from the steroids.
I am resting now and thought I would write a short post. I really can't wait to get home...and stay there! I am done with the hospital for a while. But I am on the floor that I am usually on and I feel better because I know all the nurses and tech's since I am here so much. It's pretty sad that I know the nurses all by name. Lol. This hospital is much better than in the city mainly because they are all private rooms. I just get used to that, I guess I am spoiled.
I have just been reading and watching movies on demand. Anyone with Behcet's reading this, how have you been feeling? any flare ups? Please let me know what is going on. I hope you are all doing well and staying positive. Take good care of yourself and let me know if you have any questions or need support.
Mandi
I am so sorry to hear you are in the hospital again, here is hoping you may get to go home today! I have been reading your previous blogs & wondering if you have ever read "You are Not Alone: 15 People with Behcet's" - 15 stories written in first person about men & women & children in US & Canada about their experience- it was compiled by Joann Zeiss- I think I ordered it from the link on the ABDA website. I think you would really enjoy reading it. Would love to chat soon. Hang in there. Jamie
ReplyDeleteI hope you get to come home today girlie!! Jamie, I've never heard of the book...I will have to check it out!!!! Kristi
ReplyDeleteone recommendation would be just get a lot of fiber in your diet because of pain pills and steroids. Every time i spend time at the hospital well things dont go well in that division. So even the metamucil or whatever its calle dif your having mouth sores and too hard to swallow. Take care. Look up a cheesy nurse joke to tell your nurse just so she knows your thinking about her to. its a good relationship to have :)
ReplyDeleteHi Amanda and everyone. I havent been the greatest support on the site and i know a few of you girls have become close. I had an MRI and so diagnosed with Parenchymal Neuro-Behcets on top of reg Behcets, Fibro, and osteoporosis. I am finding it very difficult to stay positive and you ladies do a great job of supporting yourselves. Im on all kinds of medications and just hope maybe could just even be part your support and maybe included is all. I really dont know where to turn i feel so isolated. Got the results for the MRI about an hour ago. Im scared, nervous, im 27 and already so much bad and all these meds, what else is next but i am strong and i try to encourage. I dont know maybe im reaching out the wrong way and im sorry just feel lost...my email is dmartin139@hotmail.com or gamil.com for the same thing...thank you ladies and Amanda thank you for sharing and being so vocal with your battle. it makes me at least not feel so like its just me and no one else. Thank you to everyone...
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